The continuum approach in cancer care is challenged by the increasing prevalence of cancer patients in India and the resource constraints of the healthcare system. As a result, oncology care has evolved to accommodate various services, placing a greater responsibility on the caregiver (CG). The informal CGs (relatives, friends) face multiple challenges in providing care for an extended period, especially due to the lack of basic medical skills. These challenges include physical, psychological (stress, fear, anxiety), economic, social (relationship issues), and spiritual (questioning the meaning of life) aspects.

The Role of Caregivers in Cancer Treatment

The chronic nature of cancer care mandates consistent interaction between the caregiver and healthcare providers regarding patient-related issues such as decision-making, coordination of care, treatment planning, and pain management. Evidence indicates the unmet supportive care needs of both cancer patients and their caregivers. Janet et al. report the unpreparedness of caregivers in their role and the significant emotional strain they experience, which depends on the severity of the disease. Many caregivers express the need for practical information on caregiving and greater social support to manage their responsibilities effectively.

Addressing the Emotional and Psychological Impact on Caregivers

The counseling services for caregivers provided at Sammprada aim to address their multidimensional and psychological reactions. This interaction seeks to help caregivers cope with disruptions in physical health, social roles, financial resources, personal time, and emotional well-being. Evidence shows that caregivers often struggle with concerns about the future, strained relationships with patients, health challenges—including mental health issues—appetite and sleep disorders, and social withdrawal, all of which negatively impact their quality of life (QoL).

Assessing the Caregiver Experience in Bangalore

Various factors, such as patient characteristics and care demands, influence caregivers’ quality of life and psychological health. Cancer not only affects the patient but also has a profound impact on their family. At Sammprada, we are conducting a quantitative study to assess caregivers’ QoL, economic transition, and spiritual orientation during the interim phase of cancer care. This study will identify the burden of caregiving and analyze the impact of various clinico-social factors across different caregiving domains.

For those seeking Caregiver Services in Bangalore, it is crucial to address the unique challenges faced by caregivers and provide them with adequate support. By understanding the diverse needs of caregivers, we can create better resources and interventions that enhance their well-being.

If you are looking for professional Caregiver Services in Bangalore, Sammprada offers counseling and support to help Attendants navigate the complexities of cancer care.

References:

1. Papadakos J, Ugas M, Quartey N.K et al. Assessing the comprehensive training needs of Informal caregivers of cancer patients: a qualitative study. Curr Oncol. 2023;30:3845–3858.
2. Kornblith A.B, Henr H.W, Ofman U.S et al. Quality of life of patients with prostate cancer and their spouses. The value of a database in clinical care. Cancer 1994;11:2791-802.